Alzheimer

Welcome to the Sir Terry Pratchett Forums
Register here for the Sir Terry Pratchett forum and message boards.
Sign up

Sarka

New Member
Oct 11, 2009
9
1,650
Warwickshire
#63
I'm going to intrude and go back to subject of the opening post briefly.

I cared for people with dementia in many of it's forms, both in acute admissions, and the later stages in private care homes. This illness brings a lot of obvious negatives for any person told they have it.

In my experience, each person has an entirely unique experience and presentation. Some people are really content, others not so. Others, in fact don't seem to mind that much and pretty much ignore it, carrying on as before as much as they can, gently accepting of change.

It's not always bad, all of the time. Whilst I cried when I first heard the news about Terry's illness, his strength, research and humour has made me feel such a big girls blouse for crying in the first place. I remembered a lot of people from the past, who showed the same spirit of revolt in the face of dementia, and who made the best of bloody bad luck.
 
#64
Sarka said:
I'm going to intrude and go back to subject of the opening post briefly.

I cared for people with dementia in many of it's forms, both in acute admissions, and the later stages in private care homes. This illness brings a lot of obvious negatives for any person told they have it.

In my experience, each person has an entirely unique experience and presentation. Some people are really content, others not so. Others, in fact don't seem to mind that much and pretty much ignore it, carrying on as before as much as they can, gently accepting of change.

It's not always bad, all of the time. Whilst I cried when I first heard the news about Terry's illness, his strength, research and humour has made me feel such a big girls blouse for crying in the first place. I remembered a lot of people from the past, who showed the same spirit of revolt in the face of dementia, and who made the best of bloody bad luck.
Thank you Sarka. A professional's viewpoint is greatly appreciated, and I also feel like a Big Girl's Blouse for crying over it when I do, but I have to remember that he is a strong man and is getting the same type of help that Stephen Hawking is and that they both have very unique ways of coping and truly odd senses of humour, both of which I ADORE.

We tend to be a little .... digressive about topics and I think this thread it becomes a brain-pain, eyes hurting from tears, emotional avoidance thingy sort of fing. If you know what I mean. Thank you so much for that input tho. It helps a lot. (((Hugs)))
 
#65
Sarka

I think that Nurses are the real heroes in the NHS, they work long, hard hours, putting up with tumours, humours, and various other ailments ending in ours. Bed bathing, helping patients to the loo - and all sorts of mucky thankless jobs and get paid PITTANCE :devil: !

Then there are over-paid over-hyped sports and celebs (Jordan, Peter Andre, David Beckham ... that ILK!) THAT get called Heroes and whinge whenever they break a nail!!!!!!!

So, all my admiration and respect goes to your former calling and I am sorry that it has all gone down hill!
 

kakaze

Lance-Corporal
Jun 3, 2009
488
1,775
#66
Sarka said:
In my experience, each person has an entirely unique experience and presentation. Some people are really content, others not so. Others, in fact don't seem to mind that much and pretty much ignore it, carrying on as before as much as they can, gently accepting of change.
I would agree with that. I've also worked as a caregiver in an assisted living facility for people with dementia. Of course, the term "dementia" covers a very wide range.

I would guess that how people cope with it depends on how much they used their mind before, which part of the mind their disease attacks, and what they've got hidden in their subconcious (and, of course, their personality).
 

Sarka

New Member
Oct 11, 2009
9
1,650
Warwickshire
#67
Tina a.k.a.SusanSto.Helit said:
Thank you Sarka. A professional's viewpoint is greatly appreciated, and I also feel like a Big Girl's Blouse for crying over it when I do, but I have to remember that he is a strong man and is getting the same type of help that Stephen Hawking is and that they both have very unique ways of coping and truly odd senses of humour, both of which I ADORE.

We tend to be a little .... digressive about topics and I think this thread it becomes a brain-pain, eyes hurting from tears, emotional avoidance thingy sort of fing. If you know what I mean. Thank you so much for that input tho. It helps a lot. (((Hugs)))
Yes Hawkings is a wonderful guy. And I understand about digressions, I love them :). One thing I always disliked about the NIN boards was not allowing you to stray. I did feel as though I was butting in, hence I felt I should say. I haven't really said anything to anyone about it, as no Pratchett fans near by, so it was good to read the thread and see everyone else as daft as me. :)

Lady Vetinari said:
Sarka

I think that Nurses are the real heroes in the NHS, they work long, hard hours, putting up with tumours, humours, and various other ailments ending in ours. Bed bathing, helping patients to the loo - and all sorts of mucky thankless jobs and get paid PITTANCE :devil: !

Then there are over-paid over-hyped sports and celebs (Jordan, Peter Andre, David Beckham ... that ILK!) THAT get called Heroes and whinge whenever they break a nail!!!!!!!

So, all my admiration and respect goes to your former calling and I am sorry that it has all gone down hill!
It's so lovely that you feel like that. .
You nurse because you can, because you want to. The minute you don't feel like that, it's time to get out. I like older people whilst they are a tough crowd I seldom went through a day without laughing. I could not stand to see them mistreated, their care mismanaged and lives devalued as I started to in NHS and private care.

kakaze said:
I would agree with that. I've also worked as a caregiver in an assisted living facility for people with dementia. Of course, the term "dementia" covers a very wide range.
Indeed, when it comes to viewing any person with a disease holistically the quality of the journey is valuable, that is what I was trying to describe.

kakaze said:
I would guess that how people cope with it depends on how much they used their mind before, which part of the mind their disease attacks, and what they've got hidden in their subconcious (and, of course, their personality).
I agree good mental health and for want of a better words, 'inner peace' prior to to visible symptoms, appear to make a difference.
 

chris.ph

Sergeant-at-Arms
Aug 12, 2008
7,991
2,350
swansea south wales
#68
Lady Vetinari said:
Sarka

I think that Nurses are the real heroes in the NHS, they work long, hard hours, putting up with tumours, humours, and various other ailments ending in ours. Bed bathing, helping patients to the loo - and all sorts of mucky thankless jobs and get paid PITTANCE :devil: !

Then there are over-paid over-hyped sports and celebs (Jordan, Peter Andre, David Beckham ... that ILK!) THAT get called Heroes and whinge whenever they break a nail!!!!!!!

So, all my admiration and respect goes to your former calling and I am sorry that it has all gone down hill!


i think nurses are a pain in my arse :laugh: :laugh: and if i find out who shaved my arse off im going to wax their head :twisted: :laugh:
 

Batty

Sergeant
Feb 17, 2009
4,154
2,600
East Anglia
#71
Sarka said:
Blimey! What happened to you?
Here's a reminder. It is well worth reading again! :laugh:
chris.ph said:
the first time i had a colonoscopy they gave me an alcohol based sedative it was supposed to knock me out , it didnt even touch me the doctor asked me how much i could drink so i told him about 16pints , he just shook his head and laughed id just absorbed the equivelant of about 12 pints and was still talking normally. i asked for my specs back and they moved the telly so i could watch, the procedure was progressing , taking biopsys and such when i spotted a black mark in my colon and asked the doctor what it was, he said it was my appendix, i then asked him "how bloody far are you up there" ;)
the one they knocked me out for the week b4 last was funnier. i got home and had a bath as i was drying my arse i yelled out "f@@@@@@ h@@@" my misses thought there was something wrong and asked if i was ok and i yelled back that the b@@@@@@s had shaved my arse when i was out cold. she nearly wet herself laughing :laugh: :laugh:
 

kakaze

Lance-Corporal
Jun 3, 2009
488
1,775
#74
Very interesting photo (and idea):



A translucent zebrafish larva showing the nervous system of the fish (green), the expression of the protein Tau (in red), and Alzheimer-like alterations of Tau (in blue). In humans Tau protein aggregates in the brains of Alzheimer patients and plays a major role in the degeneration of brain cells. By bringing Tau into translucent zebrafish larvae, the disease-causing effects of the protein can be studied directly under the microscope.
 

Kladivo

Lance-Corporal
Nov 4, 2009
130
2,275
Uberwaldleedsgothamerbyshire
#79
Oh, and BTW... If I can divert the course of the conversation from Chris' rosy cheeks for a sec. For anyone with a broadband and a computer that's on for a few hours every day I recommend having a look into Folding@Home programme. You install a small client on your computer and that program will then make scientific calculations for specific research projects using spare computing power your machine is not needing at that moment. As for now there is over 1.300.000 machines connected into, what effectively becomes, a global supercomputer. You do not have a choice of what scientific programme you'd like to contribute to, but many of them revolve around incurable diseases and genetic conditions these including Alzheimer's, Parkinson and cancer.
It's basically same principal as CETI home project but instead of wasting time and electricity on searching for wee green men from outer space you actually contribute to something useful.

You know, every little supermarket :>
 

User Menu

Newsletter