Alzheimer

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renfield

New Member
Dec 7, 2009
2
1,650
#82
possibly some useful info

this is the first time I have ever posted on a forum in my life, so here goes.
My partner is a holistic therapist and has been doing some reasearch recently on-line into alternative treatments (she suffers from fibromyalgia[I think that is how it is spelt]), one of the areas she has been looking into is nutrition, and how the use of dietry suppliments can be used to treat chronic long tern disorders.
during many hours looking into how different suppliments are used and what studies have been undertaken to quantify their effects. she came across a report into altzheimers' and some other dementia conditions.
According to the report in question in a significant proportion of cases that were looked at, the patients had been mis-diagnosed (by specialists, not just GP's)
A simple blood test revealed, that in these cases the patients in question were not suffering from any dementia related illness but a severe vitamin deficiancy (I think it was either one of the B or D vitamins, it is 3:30am and I cannot remember which). When these patients were treated with a course of these vitamins(albeit at a very high dose) they all went on to make a full recovery.
please pass this on to Terry, and I also hope this may be of some help to other sufferers out-there.
Don't loose hope.
Stay strong.
There is a cure out there waiting to be found if this doesn't help.
 

kakaze

Lance-Corporal
Jun 3, 2009
488
1,775
#83
Re: possibly some useful info

renfield said:
this is the first time I have ever posted on a forum in my life, so here goes.
Welcome to the forum renfield!

And thanks for the tip!
 

Dotsie

Sergeant-at-Arms
Jul 28, 2008
9,069
2,850
#84
Hi Renfield

I've never heard of this, but I should imagine such severe vitamin deficiency wouldn't be the case in someone able to feed themselves. It seems more likely in immobilised elderly. I do know that dementia can be a result of dehydration. As I understand it, such cases of dementia have occured in, shockingly, hospital in-patients :eek:
 

Jan Van Quirm

Sergeant-at-Arms
Nov 7, 2008
8,524
2,800
Dunheved, Kernow
www.janhawke.me.uk
#85
Welcome Renfield and thanks for the info :laugh:

Dotsie said:
I do know that dementia can be a result of dehydration. As I understand it, such cases of dementia have occured in, shockingly, hospital in-patients :eek:
:cry: Thats exactly what happened to my great uncle - in the early 70's he went in for a hip operation and came out unable to talk very coherently and unable to wash or eat without assistance. The irony was that he was well off and opted to go private. The nursing staff thought he was just 'quiet' and a no fuss patient and only made desultory checks on him after his op and it turned out he may have had a stroke a few days afterwards - they didn't notice it for about 2 days after he'd not eaten in all that time although they did put him on a drip. He never made a full recovery and even though the hip operation was completely successsful he never really walked again and was bedridden and essentially unabvle to communicate until he died about 4 years later :x
 

Tonyblack

Super Moderator
City Watch
Jul 25, 2008
30,997
3,650
Cardiff, Wales
#86
I received THIS LINK of a Guardian article on Altzheimers as an email today from someone named Moya Jackson. There was no return email address, so I'll thank Moya here and hope she sees it.

Thank you Moya! :)
 
Dec 27, 2009
2
1,650
Canada
#91
Hi all,
new here, I was devestated and horrified to hear the turn that Terry's illness has taken - my thoughts and hopes are with him and his family.
- Renfield - you may have something there, B12 and calcium under/overload can have severe effects and may happen in someone who eats normally if something is out of whack in their body.
-Doctors don't always know what's going on - they misdiagnosed me for 8 years - so I've been down that road.
-I have a suspicion that TP may have an autoimmune condition that is causing his problem; (see book Autoimmune Epidemic - rent it from the library, I'm not trying to flog it at all or connected to author). When you have autoimmune your whole body can get inflamed, and if it is inflamed then pressure put on one area can decrease circulation - if you sleep on your back (does TP sleep on his back?) this could hit the back of the head as the weight of the head itself pushes down on it.
-therefore maybe TP should try using a very good mattress that gives but supports with a very soft squishable feather pillow - it can't hurt and has no side effects ; maybe also try sleeping on the side.
- might want to try acyclovir which seems to have an unknown impact on autoimmune ; also might want to get thyroid levels checked - even if they are in normal range, but low, it can cause decreased circulation; try to get an MD to let you try a one week run of low thyroid meds
- should stay away from toxic chemicals as much as possible

well, that's all I've got folks - sorry to post so long and kind of non sequitor (sp?) my first time on here, but I consider it kind of an emergency, and I hope that either TP or his family keeps an eye on the forum.
 
Dec 27, 2009
2
1,650
Canada
#92
with your indulgence..
just one more thing - there is a fiction book called "The Memory Artists" that is about a son trying to help his Mother with Alzhiemers - and I seem to recall that though it is fiction that it contains quite a lot of groundbreaking research in it.
Also a darn good read - again, no connection between me and the authors etc.
 

renfield

New Member
Dec 7, 2009
2
1,650
#96
hello me again.
on my last post. i talked about miss-diagnosis.
i feel I need to clarify.
scans for altzhiemers shows "holes" in the brain. similar "holes" are present in the brains of people suffering from severe vitamin B12 deficiancy.
a seperate test for vitamin B12 in a number of people diagnosed with early onset altzhiemers has shown them to have a severe deficiancy in this vitamin.
in these cases a course of B12 starting at 9,000iu rising to 40,000iu has been shown to bring about a full recovery.

in other studies of people with altzhiemers, it has been found that they have high levels of aluminiun in the brain.
it advisable to not use any aluminium or non-stick cookware and use a reverse-osmotic filter, to filter all water.
this is mainly being used as a preventative measure, but it can't hurt to try it even after diagnosis.
 

raisindot

Sergeant-at-Arms
Oct 1, 2009
5,317
2,450
Boston, MA USA
#97
renfield said:
hello me again.
on my last post. i talked about miss-diagnosis.
i feel I need to clarify.
scans for altzhiemers shows "holes" in the brain. similar "holes" are present in the brains of people suffering from severe vitamin B12 deficiancy.
a seperate test for vitamin B12 in a number of people diagnosed with early onset altzhiemers has shown them to have a severe deficiancy in this vitamin.
in these cases a course of B12 starting at 9,000iu rising to 40,000iu has been shown to bring about a full recovery.
I really hate to have to comment on this, but as someone who has worked (as a volunteer) with Alzheimer's patients and who has several close relatives suffering with the disease, I need to say that there have been a number of studies conducted by reputable scientific researchers to see if elevated B12 treatments can reverse the effects the Alzheimer's. In every study, it has been shown that while B12 treatments may have certain physiological among Alzheimer's patients, it does absolutely to improve or restore their cognitive capabilities. It is wishful thinking at best.

J-I-B
 

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